About Us

ABOUT US

Our mission

The Children's Fund for Glycogen Storage Disease Research was established to make a difference in the lives of children and their families affected by GSD.

The foundation is run by parents, families, and friends.

ABOUT US

The Children's Fund for Glycogen Storage Disease Research is a public, not-for-profit 501(c)(3) foundation that aims to make a difference in the lives of children and their families affected by GSD1.  By awarding grants to the most promising GSD research, we support medical advances so that children born with GSD will benefit from early detection, treatment and an eventual cure.  All fundraising and administration are done on a 100% volunteer basis to help keep overhead expenses as low as possible.  No paid professional fundraisers are used.

Our Mission: The Children's Fund for Glycogen Storage Disease Research is dedicated to funding research so that children born with GSD1 will benefit from early detection, treatment and an eventual cure.

 

Our Ultimate Goal: To live in a world where GSD does not exist. The Children's Fund for GSD Research is leading the charge towards this reality. We are the only public charity raising money for research and supporting groundbreaking strides towards a cure. 

  • Our Story

    The Children's Fund for GSD Research is a public, not-for-profit 501(c)(3) foundation dedicated to funding GSD1 research.

  • Our Impact

    The Children’s Fund for GSD Research has had a major impact on the GSD community

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" ... because every child deserves to be healthy."

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