Board of Directors

BOARD OF DIRECTORS

Meet us!

Families working together to find a cure.  

Each one of us has a child or relative who was born with GSD1a.

BOARD OF DIRECTORS

  • Hariet
    Bonelli

    I live in Paris.  My great nephew Jonah has GSD1a.

  • David
    Feldman

    We live in Cheshire, Connecticut and have 4 boys.  Our oldest son Jonah has GSD1a.

  • Wendy
    Feldman

    We live in Cheshire, Connecticut and have 4 boys.  Our oldest son Jonah has GSD1a.

  • Karen
    Gordon

    We live in Mt. Kisco, New York and have twin boys.  Jacob has GSD1a.

  • Meredith
    Gussin

    We live in Miami, Florida and have 3 children.  Our son Jamie has GSD1a.

  • Lisa
    Hodes

    We live in Parkland, FL and have 2 daughters.  Both Samantha and Katie have GSD1a.

  • Sanford
    Hodes

    We live in Parkland, FL and have 2 daughters.  Both Samantha and Katie have GSD1a.

  • Michael
    Julius

    We live in Oak Park, California and have 3 children. Our son Adam has GSD1a.

  • Fran
    Reed

    We live in New Canaan, Connecticut and have 2 children.  Our daughter Anna has GSD1a.

  • Teri
    Reed

     We live in New Canaan, Connecticut and have 2 children.  Our daughter Anna has GSD1

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" ... because every child deserves to be healthy."

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