Cure GSD

ON THE ROAD TO A CURE

"... because every child deserves to be healthy."

Stay Up To Date:
REGISTER YOUR EMAIL

WHAT IS GSD1?

Glycogen Storage Disease Type 1 (GSD1) is a rare, genetic metabolic disorder that occurs when a specific enzyme is either missing or not functioning properly.  This enzyme is responsible for maintaining the body's blood glucose (sugar) level.  Glucose fuels every cell in our body, including brain activity.  People affected with GSD1 cannot convert stored glycogen into glucose, and therefore need a constant external source of glucose in order to survive.  Hypoglycemia in patients with GSD1 can be life threatening.  GSD1 is the most common form Glycogen Storage Disease, affecting 1 in every 100,000 births.   READ MORE

The Children's Fund for Glycogen Storage Disease Research is a public not-for-profit 501(c)(3) foundation that aims to make a difference in the lives of children and their families affected by GSD1. 

View More

As little as 40 years ago, a child born with GSD1 had very little chance of survival beyond one or two years. Today, thanks to increased awareness, medical advances and generous supporters, children are thriving and a cure is on the horizon.

VIEW MORE

Did you know…

The Children’s Fund for GSD Research is the only public charity in the world dedicated to funding research for Glycogen Storage Disease Type 1.
Over $7.5 Million Funded
Since 2002, The Children's Fund for GSD Research has granted over $7.5 million, which has led to groundbreaking therapies and an improved quality of life for people with GSD1. To date, we have funded over 55 studies, helping scientists pursue new ideas and investigate probable approaches to improve treatment and uncover a cure. 
Learn More
100% Volunteer Based
Our ultimate goal is a to live in a world where GSD does not exist. The Children's Fund for GSD Research is leading the charge towards this reality. All fundraising and administration are done on a volunteer basis so that nearly 100% of all contributions can be used to support our mission. Join our cause!
Get Involved

News & Events

  • Gene Therapy
    Update

    We reached a milestone when the first dose of Gene Therapy was delivered to a GSD patient.  Preliminary results have been extremely positive. 

    Learn More

  • Amazon Prime
    Day!

    Please help support our foundation!  Simply shop at smile.amazon.com/ch/04-3638491 or with AmazonSmile ON in the Amazon Shopping app and AmazonSmile will donate a portion of your sales to The Children's Fund for Glycogen Storage Disease Research.
    Start Shopping!

  • Your Online Shopping Helps

    You can help us fund promising GSD research with your online shopping, some at no extra cost to you.
    Learn How
Join Mailing List
Tell A Friend
Donate Now
Upcoming Events
View Current Fundraisers
Start A Fundraiser
CONFIG TEMPLATE

This template controls the elements:

FOOTER: Footer Title, Footer Descriptions
CUSTOM MENU: Images and columns into header main menu submenu items

* This message is only visible in administrative mode

" ... because every child deserves to be healthy."

We may use cookies to give you the best experience on our website.
In accordance with our Privacy Policy, you hereby agree to our use of cookies on this device.