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The Children's Fund for GSD Research is a not-for-profit (501c3) foundation, established to benefit children born with Glycogen Storage Disease (GSD1).
Links to Websites of Interest


National Organization for Rare Disorders (NORD)
A comprehensive database working toward the prevention, treatment and cure of rare "orphan" diseases.

Genzyme Genetics - Genzyme Corporation
Please visit this website to find out more information on testing for GSD1a.GSD1a was recently added to the Ashkenazi Jewish prenatal screening panel.
Association for Glycogen Storage Disease (UK)
Established in 1986 as a family contact and support group for all persons and their families affected by some form of GSD.
Association for Glycogen Storage Disease (US)
Established in 1979 as a parent and patient oriented support group for anyone associated with GSD.
Duke University Medical Center, Dr. Dwight Koeberl
Research Information page
Connecticut Children's Medical Center, Dr. David Weinstein

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