• What is GSD?
    Glycogen Storage Diseast Type 1a (GSD1a) is the most common genetically inherited glycogen storage disease. Individuals with GSD1a have a defective gene for the enzyme glucose-6-phosphatase, resulting in the inability to regulate blood sugar (glucose). Hypoglycemia in GSD1a patients can be life-threatening, while the accumulation of the complex sugar glycogen in certain organs and tissues can impair the ability of these tissues to function normally. Most patients with GSD1 need to an external source of glucose every 2-4 hours in order to survive.
  • Our Foundation
    Our Foundation
    The Children's Fund for Glycogen Storage Disease Research is a public not-for-profit (501c3) foundation established in 2002 to make a difference in the lives of children and their families affected by GSD1. Our foundation is run by parents, family and friends of children affected by GSD1. All fundraising and administration are done on a 100% volunteer basis.
  • Finding a Cure
    Finding a Cure for GSD
    As little as 40 years ago, a child born with GSD1 had very little chance of survival beyond one or two years. Today, thanks to increased awareness, medical advances and generous supporters, children are thriving and a cure is on the horizon.
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The Children's Fund for GSD Research is a not-for-profit (501c3) foundation, established to benefit children born with Glycogen Storage Disease (GSD1).



Tuesday, May 5th has been designated #GivingTuesdayNow as an emergency response to Covid-19.  Please help us get through this crisis with a donation towards GSD research. 
We are grateful for your support.   

In Loving Memory of Dr. Philip Lapidus


Our deepest sympathies to the Gordon family and the Bellick family upon the passing of their loving dad and grandpa, Dr. Philip Lapidus.  The Children's Fund for GSD Research was very important to Dr. Lapidus whose grandson Jake has GSD1a.

Please click HERE to give a gift in his memory

Super Bowl Raffle

And the winner is...
Patti Hoppin of West Hartford!

Congratulations Patti! 
Enjoy your weekend in Miami!!

Thank you to everyone who participated. With your ticket purchases and donations, we raised over $50,000 for GSD Research!  Together, we will find a cure.  We are truly grateful for your support. 




Ultragenyx is looking to interview adults, adolescents, and children with GSD1a to discuss their experience and get a better understanding of GSD.  Results will be used to develop future studies.  For more information, please click below to download the flyer. 


What a fun and meaningful night we had at The White Party on September 21st.  Thank you to our sponsors, in-kind supporters, underwriters, auction donors, contibutors and guests.  With your help, we were able to raise over $300k for The Children's Fund for GSD Research.  We are truly grateful for your support.  Please click below to view photos from the gala.  

Photo Op Photos

Candid Photos

Great News in the World of GSD!

Positive results in Phase 1 Gene Therapy Trials. 

Read the Article 


On Monday, July 24, 2018, we reached a milestone when the first dose of gene therapy was delivered to a GSD patient in the Lab at the University of Connecticut.  This is only the beginning of the study but we are hopeful for the future.  Thank you to everyone who has supported our cause and helped us get to this point.   We will keep you updated on our progress.  

Read the Article

Proudly Supporting GSD Research

Jonah Feldman presents a check for $158,329.00 from The Children's Fund for GSD Research to Dr. Youngmok Lee, Assistant Professor of Medicine, and Ana Estrella, Research Assistant, at UConn Health.  We are proud to continue our support of the GSD program led by Dr. David Weinstein at UConn.  

With your help, we will find a cure.  

Dr. Weinstein now in Connecticut!

Dr. Weinstein and his world-renowned Glycogen Storage Disease Program has moved to The UConn's School of Medicine and Connecticut Children's Medical Center.  

Learn More


Shop at AmazonSmile and help cure GSD!

AmazonSmile is a simple and automatic way for you to support THE CHILDREN'S FUND every time you shop, at no cost to you. When you shop at smile.amazon.com, you'll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that Amazon will donate a portion of the purchase price to our foundation.   Click below for more details. And remember to choose The Children's Fund for Glycogen Storage Disease Research as your charity of choice!

Tell Me How

Sleeping Through the Night

Glycosade, manufactured by Vitaflo, is an extended release "super starch" that enables GSD patients to safely last 7-10 hours overnight without additional dosing.  This is one of the greatest advancements for Glycogen Storage Disease in over 25 years. 


Learn More About glycosade

Shopping for a Cause

iGive.com has partnered with over 1,577 brand name stores to help us raise money for The Children'S Fund. Each time you make a purchase at one of these stores (PETCO, Bed Bath and Beyond, Shoebuy.com, BJs Wholesale Club, Drugstore.com, The Body Shop, Amazon, Best Buy, etc.) a percentage is donated to our foundation. It only takes a minute to sign up and doesn't cost you anything. We have already raised over $1,500.00 for research!  Thank you so much to all of our dedicated shoppers!

Start Shopping!

Congratulations Dr. Weinstein!


Weinstein earns global recognition for his work with Glycogen Storage Disease as recipient of the prestigious Order of the Smile Humanitarian Award.

See Full Article

Hopes & Dreams

We hope you enjoyed our recent newsletter, Hopes and Dreams.  We've made tremendous progress over the last few years.  Your generous donations will help us to keep the progress towards a cure moving forward.  

Please click HERE to make an online contribution.  

Didn't receive a copy of Hopes and Dreams?  Click HERE to download a PDF now.

Thank you for your support! 



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