Why we exist
Prior to 2002, there was virtually no research being done on GSD.
In its first year, the foundation funded 2 grants and research towards a cure began.
At that time there was very little research being conducted on GSD. Cornstarch therapy had been introduced to maintain blood sugar levels, but there was no one looking for a cure. The Feldmans knew something needed to be done. With the help of Dr. David Weinstein, they reached out to the Julius family and the Reed family, whose young children had also been recently diagnosed with GSD1. Together, along with Jonah's aunt, Valerie Rosen, they established The Children's Fund for Glycogen Storage Disease Research. In its first year, the foundation funded 2 grants in the amount of $100,000 and research towards a cure began.
Our foundation continues to grow as more families join together with the common goal of curing GSD. We focus on fundraising and spreading awareness, while building a stronger GSD community.
The Children's Fund for GSD Research is a public, not-for-profit 501(c)(3) foundation dedicated to funding GSD1 research.
The Children’s Fund for GSD Research has had a major impact on the GSD community
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" ... because every child deserves to be healthy."