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Links
Websites
of Interest
National
Organization for Rare Disorders
(NORD)
www.rarediseases.org
A comprehensive database
working toward the prevention,
treatment and cure of rare
"orphan" diseases.
Genzyme
Genetics - Genzyme Corporation
www.genzymegenetics.com
Please
visit this website to find
out more information on
testing for GSD1a.GSD1a
was recently added to the
Ashkenazi Jewish prenatal
screening panel.
Association
for Glycogen Storage Disease
(UK)
www.agsd.org.uk
Established
in 1986 as a family contact
and support group for all
persons and their families
affected by some form of
GSD.
Association
for Glycogen Storage Disease
(US)
www.agsdus.org
Established
in 1979 as a parent and
patient oriented support
group for anyone associated
with GSD.
Duke
University Medical Center,
Dr. Dwight Koeberl
https://faculty.duke.edu/faculty/info?pid=4836
Research
Information page
University
of Florida, Dr. David Weinstein
Glycogen
Storage Disease Program
website
www.glycogenstoragedisease.com
Marketplace
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PHOTO
FASHIONS JEWELRY
Photo
Fashions donates all of
its profits, after tax,
to The Children's Fund for
GSD Research. For
more information, go to
this website: www.photofashions.com
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igive.com
By
signing up for this website,
when you make online purchases
at over 680 brand name stores,
a portion of each online
purchase is donated to The
Children's Fund for GSD
Research. It
doesn't cost you anything,
it only benefits our Cause.
Please consider becoming
a member.
www.igive.com
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Visit
this website or call toll
free 1-866-272-8542 to order
from over 200 sugar-free
(GSD1 friendly) candies/chocolates!
Worldwide shipping is available.
www.gumdropgarden.com
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HOPES
AND DREAMS COFFEE!
Using
only the highest quality
Arabica beans, imported
from the richest regions
in the world, we roast per
order and when requested,
flavor just hours before
it is sent out to you. Our
coffees have been described
as “an experience” each
estate and flavor tells
its own story in a cup.
When you buy Hopes and Dreams
Coffee, 33% of all sales
go directly to this wonderful
organization. So while you
are enjoying the coffees,
you are also helping find
a cure for GSD!
To
purchase Hopes and Dreams
coffee log on to www.ronacoffees.com
and at checkout
enter promo code: GSD
For
more information on the
story behind the coffee
(click here)
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