Links
Websites
of Interest
National
Organization for Rare Disorders
(NORD)
www.rarediseases.org
A comprehensive database
working toward the prevention,
treatment and cure of rare
"orphan" diseases.
Genzyme
Genetics - Genzyme Corporation
www.genzymegenetics.com
Please
visit this website to find
out more information on
testing for GSD1a.GSD1a
was recently added to the
Ashkenazi Jewish prenatal
screening panel.
Association
for Glycogen Storage Disease
(UK)
www.agsd.org.uk
Established
in 1986 as a family contact
and support group for all
persons and their families
affected by some form of
GSD.
Association
for Glycogen Storage Disease
(US)
www.agsdus.org
Established
in 1979 as a parent and
patient oriented support
group for anyone associated
with GSD.
Duke
University Medical Center,
Dr. Dwight Koeberl
https://faculty.duke.edu/faculty/info?pid=4836
Research
Information page
University
of Florida, Dr. David Weinstein
Glycogen
Storage Disease Program
website
www.glycogenstoragedisease.com
Event
to raise $ for Alyssa's
Angel Fund:
Big Wheel Derby!
(click
here to find out more information)
Sunday,
September 6th, 2009 at 10:00am
Mandell
JCC in West Hartford
Marketplace
____________________________________________________________________
PHOTO
FASHIONS JEWELRY
Photo
Fashions donates all of
its profits, after tax,
to The Children's Fund for
GSD Research. For
more information, go to
this website: www.photofashions.com
____________________________________________________________________
igive.com
By
signing up for this website,
when you make online purchases
at over 680 brand name stores,
a portion of each online
purchase is donated to The
Children's Fund for GSD
Research. It
doesn't cost you anything,
it only benefits our Cause.
Please consider becoming
a member. www.igive.com
______________________________________________________________________
Gum Drop Garden
Visit this website or call toll
free 1-866-272-8542 to order
from over 200 sugar-free
(GSD1 friendly) candies/chocolates!
Worldwide shipping is available. www.gumdropgarden.com
_____________________________________________________________________
AROMA
RIDGE COFFEE
www.aromaridge.com
We
are happy to announce that
the Aroma Ridge Coffee Company
will generously be giving
20% of all GSD coffee sales
to The Children's Fund
for GSD Research!
Please
spread the word to your friends
and family who drink lots
of coffee!!!
By
clicking on the link above,
you can enter the Aroma Ridge
GSD coffee page directly.
If
you have any questions, you
can email: contact@aromaridge.com
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